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Rubinstein-Taybi Syndrome
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Monday, October 24, 2011

  Do not dwell in the past, do not dream of the future, 
concentrate the mind on the present moment.
'Buddha'  

Rubinstein Taybi Children are known to have slippery knee caps, this is what happened to Buddy, his left patella slid to the side of his knee. 

Buddy had knee surgery in April 2009, after surgery with the help of a KAFO leg brace he was able to walk, then his foot went numb from the brace, once we got the feeling back in his foot the brace was to small and he took a turn for the worse and his knee contracted.

After a 2 month stay at Shriner's Hospital in Louisianan and weeks of recasting, they were able to un-contract the knee but without re-bracing him in a KAFO, he stopped trying to walk and took a turn for the worse, now both knees are contracted. 

We have since moved back to Michigan and Buddy has a team of Doctors at the University of Michigan Hospital that have tried everything to help him, his last chance at walking again is Hamstring Lengthening Surgery. 

Buddy has gone through MRI's, CAT's Ultra Sounds, it was found that he has slight scoliosis w/a low lying spine w/small fatty tissue at the base w/no signs of a Tethered Spinal Cord which all RTS children should be examined for. .

As of today Monday October 24, 2011 both of Buddy's knees have contracted, he is scheduled for hamstring surgery Tuesday October 25, 2011 at the 
University of Michigan Hospital 
in Ann Arbor, Michigan

I hope you enjoy some of the videos we have made over the last few years of Buddy's progress, trials, set backs, and victories. 

[turn music player off at bottom of page to watch video's]


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